Excerpt from 1000 Last Goodbyes

Zero. What an awful number. Especially if you’re staring at it, in blaring red neon on the heart machine. I was sitting next to my 86 pound dad in the hospital, listening to the slowed beeping of the machine. His gaunt, pale, sunken face haunted me, but it still didn’t stop me from climbing into his bed with him, knowing I would never get the chance again. The COPD he had battled for years had finally overtaken his lungs, causing him to go into unconsciousness when they wheeled him into the emergency room from the ambulance, a few days prior. The nurse had said, it was only a matter of time, until he would slip away. She soon came in the room and said it was time, he was ‘ready’. She left my mom and I to be with him. My sweet mama, stricken with her second bout of lung cancer, sat on the chair with her colored scarf covering her chemo ridden scalp, seemed nervous; scared. She didn’t know quite what to do. I laid my head on his chest and watched his lifeless body slip away as I stared at the machines. I told my mom to come over and say goodbye.  Suddenly, I heard his heart beating again with my ear that was on his chest! I said, “He’s alive! Go get the nurse!” My dad raised up his right arm, as if it was once last flailed attempt to beat this disease, then dropped it to the bed. He was gone. Years of smoking would take his life and then my moms just 4 months later. 

So why then, 12 years later, were my oldest daughter and I, standing in a convenience store, on an Indian reservation, in the middle of December, waiting in a long line of people who were all there for the same reason? To get a carton of Lucky Strike cigarettes for half the price. It was for my son, of course-isn’t everything? He was in his first rehab-out of state. Remember, life with an addict has you doing things you never thought you would. Your standards drop bigtime as you celebrate small victories that are unexplainable to regular people with regular problems that don’t involve substance use. As it was, we were actually thrilled to have found these cigarettes for him because we had searched online on how to send some directly to him. Apparently that’s not an option, it’s illegal or something. So that kids can’t buy them online.

Turns out that even though both your parents died of lung related diseases-directly as a result of smoking all their life-the shock of finding out that your kids smoke, has completely worn off when you realized your son is a heavy IV drug user.  To ‘Only Smoke” is HUGE compared to THAT dark world. We were thrilled to be able to do that for him, as long as he was in rehab, and they were allowing cigarettes to help with the absence of the drugs.

My son finished that rehab for a total of 72 days clean. Almost a miracle in the world of addicts. But as naively “first-timers to rehab” we were, we were shocked when it didn’t “cure” him. Our healthy brains could not wrap around this non-linear course of addiction and recovery. With any other mistake or unfortunate event such as a fire or earthquake, you process the shock, clean up the damage, and rebuild. What we didn’t know then, is that fire and and inanimate objects don’t have ingrained trauma or other mental health issues that continually fight against the rebuilding. Habits are engrained in humans to create safety and order. In the ADD, addicted brain it is no different. The path of least resistance, even after a break, and a few good counseling sessions, is to go right back into the fire. That evil, disintegrating , rabid fast burning fire that has shattered so many people and families’ lives. Do you run into it to save them? Or stand there in utter horror, hoping and praying that they walk out with most of their faculties intact…..

NOT ᗰY ᑕᕼIᒪᗪ

For all those who see the purple banners during overdose awareness month or see the videos of people with substance abuse disorders passed out and you scroll on by thinking, “I’m sure glad that doesn’t affect me, I’m glad I taught my kids better” or “someone should have gotten them some help”.

I applaud you.

I truly do.

I am so glad that you have never had to watch your beautiful child turn into someone you didn’t know.

I’m so glad you’ve never had a call from the inmate phone system asking if you’ll accept the charges.

I’m soooo glad you’ve never had the experience of watching your 28-year-old, 240 lb son thrash around in the back seat sweating, then freezing, begging his own mother to please take him to get drugs to stop this sickness, as you’re trying to take him to rehab.

I’m sooo glad you’ve never had to see a dad in a restaurant with his kids & have your heart ache so deeply that your son isn’t with his kids, that you go out to your car and burst into tears.

I’m so glad you don’t have to sit down at a delicious meal & feel a twinge of guilt knowing your child hasn’t eaten for days & wondering where he even is.

I’m so glad you’ve never had to see your precious grandkids celebrate a birthday & not knowing the words to tell them that their dad has a progressive illness that teaches him lies that he doesn’t have to be a dad & that’s it’s NOT because they are not worthy of love.

The innocent victims of substance abuse disorder

I’m glad that you would never tell a dying lung cancer patient that they shouldn’t have started smoking, and they should just get over this pesky illness that’s inconvenienced everyone and just get a job!

I truly am.
Because I wouldn’t wish this nightmare on anyone.

I would never want anyone to lay awake at night, unable to stop the tears, wondering what they could have done differently.

I’m very glad you haven’t ever got THE CALL.

I’m very glad that you taught your kids to make better choices, & that you’ve never broken the speed limit or took a drink, or had something so traumatic in your life that you just needed to get through the pain for a minute… And if you did, luckily you were able to stop or walk away with any devastating effects.

Great genes, or coping skills!

What about helping teach those to others?

Obedience to all the laws and principles is great and admirable and yes it does make for a safer and all- be- it more productive life.(I mean who doesn’t want to be perfect) but not if it makes us look down on others who-for whatever reason didn’t go down that ←→ path.

This problem IS everyone’s problem.

Addiction affects every aspect of society, whether directly or indirectly. From the homeless to the prisons to the overwhelmed court system with possession charges taking up so much time. Stringing people through the system costs taxpayers almost $100 k per inmate.

I don't want one more parent to have to bury a child due to drugs or alcohol, but the only way that's going to happen is if we ALL take on this epidemic as our problem, & truly make an effort get rid of judgements and stigmas which bring MORE SHAME to all involved. 

Shame and embarrassment are keeping people from seeking treatment.

We need to create practical affordable solutions for all- while eliminating the waste & fraud in treatment.

Even if that means opening our mind up to alternative treatments such as Harm reduction.

The death rate is frightening and it IS AN EPIdemic as it affects the core of the family structure, jobs, crime, the jail system, and little kids who grow up with the stigma of a parent in jail or who has died.

If you don’t have any idea how to help, how about start with the words we use, such as junkie, tweaker & worthless. These are shaming and hurtful to the families & children of addicts. And don’t forgot, under that hardened core of a dysfunctional chaotic addict, is a person in pain with zero healthy coping skills. The least we can do is not to add to it.

Or what about not arguing about insulin needing to be free. Maintenance meds are not usually free to anyone, but AED paddles and Narcan to revive-not treat, are free to EMTS.

Other people in pain aren’t the enemy.

It’s going to take all hands on deck to help stop this nightmare, just like the virus grabbed everyone attention. This epidemic existed long before that and will continue after. Most of the typical solutions are not working anymore, and needs to be revamped with new attitudes and ideas. These ideas must start with compassion not disgust. Not sarcastic answers and opinions on why they started.

Please offer your compassion and time. Even if you don’t understand how it progresses to such a dysfunction of incarceration or homelessness, you can still give HOPE to a suffering addict or a kind word to the family of a person with a substance use disorder.

You can give that struggling person on the corner, a $5 McDonald’s card to let him know that -yes someone does give a damn- today…

Without HOPE, everyone suffers.